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1317 publications found

Sep 21, 2011 Commentary
Genomics' problem of communication

by Jenny Reardon

Since opening their doors in late 2006, personal genomics (PG) companies have faced skepticism and criticism from influential academic and government circles. While this has posed a clear problem of communication for these companies — one of effective promotion — I argue that the communication problem these companies face runs much deeper. It is a problem that lies at the heart of any genomics: the very understanding of communication and information around which genomics is built. While the value of genomic information for persons has been widely questioned, questions about the very notion of information that undergirds the production of genomic information rarely, if ever, has been broached. I suggest that making significant inroads into the vexing debates about PG would be greatly aided by addressing these more fundamental questions about the nature of information, and its genomic qualities.

Volume 10 • Issue 03 • 2011

Sep 21, 2011 Commentary
DCGT: the individual's benefits above all

by Donato Ramani and Chiara Saviane

Easy, cheap, efficient as online service often are. Direct to Consumer Genetic Testing (DCGT) represents a big evolution towards personalised medicine. If the phenomenon seems to be unstoppable, the first aim of its present and future developments should be the customers’ benefits. A certified quality of the services provided, a clear communication and a well-structured support to customers should be the critical conditions that could transform those online services in something really important: for the individual’s health and the society as a whole.

Volume 10 • Issue 03 • 2011

Sep 21, 2011 Commentary
Of deterritorialization, healthism and biosocialities: the companies' marketing and users' experiences of online genetics

by Pascal Ducournau and Claire Beaudevin

Since the early 2000s, anybody can buy genetic tests, directly sold on the Internet. These tests provide information about susceptibilities to some diseases and/or about ancestry. Thus, this article deals with a new e-market, whose scientific basis (validity of the tests) and status (as medical devices or consumer goods) are currently controversial. On one hand, we describe the tests and the advertisement and marketing strategies used by the companies (we made an inventory of about 40); on the other hand, we discuss several aspects on the basis of interviews conducted with users: first, the entanglement of these strategies with the global context of healthism and the emphasis put on individuals’ empowerment regarding health decisions — “individualized biopolitics”. In addition, this article broaches the new kind of biosocial networks appearing in these tests’ wake: some users indeed gather on the basis of a genetic proximity, as is it put forward by their results.

Volume 10 • Issue 03 • 2011

Sep 21, 2011 Commentary
From symptomatic to pre-symptomatic patient: the tide of personal genomics

by Marina Levina and Roswell Quinn

Personal Genomics Companies are an emerging form of biotechnology startup that bring rapidly advancing whole genome technologies to a variety of commercial venues. With a combination of direct-to-consumer marketing, social media, and Web 2.0 applications these companies seek to create novel uses, including entertainment, for what is described as predictive medicine – that is the use of genetic marketers to create health forecasts that would allow individual’s healthcare to be tailored to their individual genomic data. In this brief piece, the authors use a critical cultural approach to question how this combination of genomics research, marketing, and communications technologies may alter both patient experiences and research processes. In it we argue these companies radically expand the definition of a patient by claiming all consumers are simply pre-symptomatic patients. Moreover, by placing genomic data on both the marketplace and cyberspace, personal genomic companies seek to create new avenues of research that alter how we define (and access) research agendas and human subjects. Therefore, beyond commonly discussed issues of ethics and privacy rights, Personal Genomics has the potential to alter both healthcare priorities and distribution.

Volume 10 • Issue 03 • 2011

Sep 21, 2011 Commentary
Know your genes. The marketing of direct-to-consumer genetic testing

by Alessandro Delfanti

Genetic testing promises to put the ability to decide about our life choices in our hands, as well as help solve crucial health problems by preventing the insurgence of diseases. But what happens when these exams are managed by private companies in a free market? Public communication and marketing have proven to be crucial battlefields on which companies companies need to engage in order to emerge. This issue of JCOM tries to shed some light on the communication and marketing practices used by private companies that sell direct-to-consumer genetic testing, from single genetic mutations to whole genome sequencing.

Volume 10 • Issue 03 • 2011

Sep 21, 2011 Article
A pilot project to encourage scientific debate in schools. Comics written and peer reviewed by young learners

by Giovanni Lo Iacono and Adélia S.A.T. de Paula

Comprehension of the nature and practice of science and its social context are important aspects of communicating and learning science. However there is still very little understanding amongt the non-scientific community of the need for debate in driving scientific knowledge forward and the role of critical scrutiny in quality control. Peer review is an essential part of this process. We initiated and developed a pilot project to provide an opportunity for students to explore the idea that science is a dynamic process rather than a static body of facts. Students from two different schools experienced the process of peer-review by producing and reviewing comics related to the science done at Rothamsted Research. As authors, students showed a large degree of creativity and understanding of the science while as referees they showed good critical skills. Students had at first hand an insight into how science works.

Volume 10 • Issue 03 • 2011

Sep 15, 2011 Article
Public understanding of environment and bioenergy resources

by Gauhar Raza, P.V.S. Kumar and Surjit Singh

There exists a distinct disconnect between scientists’ perception of nature and people’s worldview. This ‘disconnect’ though has dialectical relationship with science communication processes which, causes impediments in the propagation of scientific ideas. Those ideas, which are placed at large cultural distance, do not easily become a part of cognitive structure of a common citizen or peoples thought complex. Low level of public understanding of bio-energy technologies is one such sphere of understanding. The present study is based on assumption that public debate on bio-energy is part of the larger human concern about climate change. In this paper we present meta-analyses from published literature and take a look at the surveys that have been carried out at national and international level. In the second section of the article we also present analysis of the survey study carried out in India and locate the shifts in public understanding of science.

Volume 10 • Issue 03 • 2011

Jul 25, 2011 Article
Media framing of stem cell research: a cross-national analysis of political representation of science between the UK and South Korea

by Leo Kim

This paper compares opinion-leading newspapers’ frames of stem cell research in the UK and South Korea from 2000 to 2008. The change of news frames, studied by semantic network analysis, in three critical periods (2000-2003/2004-2005/2006-2008) shows the media’s representative strategies in privileging news topics and public sentiments. Both political and national identity represented by each media outlet play a crucial role in framing scientific issues. A news frame that objectifies medical achievements and propagates a popular hope evolves as a common discourse in The Telegraph and The Guardian, with expanded issues that both incorporate and keep in check social concerns. South Korea’s Chosun Ilbo follows the frame of objectified science with a strong economic motivation, while Hankyoreh remains critical of the ‘Hwang scandal’ and tempers its scientific interest with broader political concerns.

Volume 10 • Issue 03 • 2011

Jul 11, 2011 Article
Print media reportage of agricultural biotechnology in the Philippines: a decade’s (2000-2009) analysis of news coverage and framing

by Mariechel J. Navarro, Jenny A. Panopio, Donna Bae Malayang and Noel Amano Jr.

This article presents key results of a ten-year study of media coverage of agricultural biotechnology in the Philippines, the only country in Asia to date to approve a biotech food/feed crop (Bt corn) for commercialization. The top three national English newspapers – Manila Bulletin, Philippine Daily Inquirer, and Philippine Star were analyzed to determine patterns of media attention measured by coverage peaks, tone, source of news, keywords, and media frames used. Biotechnology news was generally positive but not high in the media agenda. News coverage was marked by occasional peaks brought about by drama and controversial events which triggered attention but not long enough to sustain interest. The study provides a glimpse into the role of mass media in a developing country context. It shows how a complex and contentious topic is integrated into the mainstream of news reporting, and eventually evolves from an emotional discourse to one that allows informed decision making.

Volume 10 • Issue 03 • 2011

Jun 21, 2011 Editorial
Where is public communication of science going?

by Alessandro Delfanti

We have published this issue of JCOM while the call for papers is open for the twelfth Public Communication of Science and Technology conference. The biennial meeting will be held in April 2012 and for the first time in Italy: the hosting city in Florence. The 2012 edition of the PCST conference is being held after more than twenty years of growth of the network of scholars that founded it and the expansion of its boundaries outside the European context from which it was created. JCOM is a part of this network, made up not only of individuals but also of organisations, university departments, journals, national conferences and so on.

Volume 10 • Issue 02 • 2011

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