Including lived experience voices in science communication to combat mental illness stigma: insights from India
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
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Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
This essay examines citizen science, from a theoretical and conceptual perspective, as an evolving field situated within emerging agendas for rights that intersect with struggles for environmental, cognitive, and data justice. It contends that citizen science is a polysemic concept, encompassing practices ranging from instrumental data collection to democratic knowledge co-production. Drawing on diverse theoretical contributions and incorporating recent debates within the participatory sciences approach, the essay foregrounds perspectives from Global South authors, particularly decolonial and anti-colonial Latin American thought. The essay explores how citizen science may either challenge or reinforce power asymmetries. On the one hand, it can amplify diverse knowledge systems, foster intercultural dialogue, and act as a form of data activism, strengthening citizenship. On the other, it risks reinforcing platform capitalism, digital surveillance, and data extraction, thereby undermining community autonomy. Cognitive justice and data sovereignty are therefore not inherent conditions of citizen science, but outcomes dependent on equitable governance arrangements, ethical protocols and safeguards, and open infrastructures.
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)