1305 publications found
Personal Genomics Companies are an emerging form of biotechnology startup that bring rapidly advancing whole genome technologies to a variety of commercial venues. With a combination of direct-to-consumer marketing, social media, and Web 2.0 applications these companies seek to create novel uses, including entertainment, for what is described as predictive medicine – that is the use of genetic marketers to create health forecasts that would allow individual’s healthcare to be tailored to their individual genomic data. In this brief piece, the authors use a critical cultural approach to question how this combination of genomics research, marketing, and communications technologies may alter both patient experiences and research processes. In it we argue these companies radically expand the definition of a patient by claiming all consumers are simply pre-symptomatic patients. Moreover, by placing genomic data on both the marketplace and cyberspace, personal genomic companies seek to create new avenues of research that alter how we define (and access) research agendas and human subjects. Therefore, beyond commonly discussed issues of ethics and privacy rights, Personal Genomics has the potential to alter both healthcare priorities and distribution.
Direct-to-consumer (DTC) genetic testing has generated a great deal of social controversy. While the degree to which DTC testing actually causes harm remains uncertain, there is a consensus that the information provided by these companies should be accurate. Unfortunately, this is often not the case. Indeed, there are misrepresentations associated with all forms of testing, be it for superficial cosmetic services, athletic ability or disease predisposition. Countering this phenomenon will require a wide range of actions, including the use of formal regulatory mechanisms, the education of primary healthcare providers (in order to give them the tools necessary to advise patients and respond to questions) and more aggressive action by the genetic research community.
Genetic testing promises to put the ability to decide about our life choices in our hands, as well as help solve crucial health problems by preventing the insurgence of diseases. But what happens when these exams are managed by private companies in a free market? Public communication and marketing have proven to be crucial battlefields on which companies companies need to engage in order to emerge. This issue of JCOM tries to shed some light on the communication and marketing practices used by private companies that sell direct-to-consumer genetic testing, from single genetic mutations to whole genome sequencing.
Comprehension of the nature and practice of science and its social context are important aspects of communicating and learning science. However there is still very little understanding amongt the non-scientific community of the need for debate in driving scientific knowledge forward and the role of critical scrutiny in quality control. Peer review is an essential part of this process. We initiated and developed a pilot project to provide an opportunity for students to explore the idea that science is a dynamic process rather than a static body of facts. Students from two different schools experienced the process of peer-review by producing and reviewing comics related to the science done at Rothamsted Research. As authors, students showed a large degree of creativity and understanding of the science while as referees they showed good critical skills. Students had at first hand an insight into how science works.
There exists a distinct disconnect between scientists’ perception of nature and people’s worldview. This ‘disconnect’ though has dialectical relationship with science communication processes which, causes impediments in the propagation of scientific ideas. Those ideas, which are placed at large cultural distance, do not easily become a part of cognitive structure of a common citizen or peoples thought complex. Low level of public understanding of bio-energy technologies is one such sphere of understanding. The present study is based on assumption that public debate on bio-energy is part of the larger human concern about climate change. In this paper we present meta-analyses from published literature and take a look at the surveys that have been carried out at national and international level. In the second section of the article we also present analysis of the survey study carried out in India and locate the shifts in public understanding of science.
This paper compares opinion-leading newspapers’ frames of stem cell research in the UK and South Korea from 2000 to 2008. The change of news frames, studied by semantic network analysis, in three critical periods (2000-2003/2004-2005/2006-2008) shows the media’s representative strategies in privileging news topics and public sentiments. Both political and national identity represented by each media outlet play a crucial role in framing scientific issues. A news frame that objectifies medical achievements and propagates a popular hope evolves as a common discourse in The Telegraph and The Guardian, with expanded issues that both incorporate and keep in check social concerns. South Korea’s Chosun Ilbo follows the frame of objectified science with a strong economic motivation, while Hankyoreh remains critical of the ‘Hwang scandal’ and tempers its scientific interest with broader political concerns.
This article presents key results of a ten-year study of media coverage of agricultural biotechnology in the Philippines, the only country in Asia to date to approve a biotech food/feed crop (Bt corn) for commercialization. The top three national English newspapers – Manila Bulletin, Philippine Daily Inquirer, and Philippine Star were analyzed to determine patterns of media attention measured by coverage peaks, tone, source of news, keywords, and media frames used. Biotechnology news was generally positive but not high in the media agenda. News coverage was marked by occasional peaks brought about by drama and controversial events which triggered attention but not long enough to sustain interest. The study provides a glimpse into the role of mass media in a developing country context. It shows how a complex and contentious topic is integrated into the mainstream of news reporting, and eventually evolves from an emotional discourse to one that allows informed decision making.
Although the debates on the Internet (sceptical, enthusiastic and finally more mature ones) in our country started in the mid 90s, it is only over the past few years that the Internet, especially thanks to social networks, has become a daily practice for millions of Italians. Television still is the main medium to spread information, but as it becomes increasingly cross-bred with the Internet (and other media too), the information-spreading process deeply changes. This creates, also in our country, the preconditions for the development of a web public (an active and connected one), founded on the new practices of multitasking and participatory information.
What role and citizenship has the scientific thought on the web, or rather on the social side of the web? Does it benefit from the debate between peers and with the general public, or else does it only risk to become a monologue? How to deal with the number of instruments the Internet is able to provide in making, discussing and disseminating research? These are some of the questions tackled by the reflections from scholars and experts which were the basis for our debate.
The Internet has become a worldwide phenomenon. It is undeniable that the Net has forcefully entered everyday life, ceasing to be a useful tool only for a small circle of researchers and academics, to become a new and versatile means of mass communication. And measuring Internet access and calculating the number of Internet users is not easy. By using the domain names registered in the “.it” as an endogenous metric, the Institute of Informatics and Telematics of the Italian National Research Council (IIT-CNR) carried out a research on Internet diffusion in Italy taking into account some major categories of users (enterprises, non-profit organizations, individuals, professionals and public bodies) and territorial distribution (nation, macro-area, region and province). This research has made it possible to carry out an initial analysis of the digital divide in Italy.