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1255 publications found

Sep 21, 2011 Commentary
Know your genes. The marketing of direct-to-consumer genetic testing

by Alessandro Delfanti

Genetic testing promises to put the ability to decide about our life choices in our hands, as well as help solve crucial health problems by preventing the insurgence of diseases. But what happens when these exams are managed by private companies in a free market? Public communication and marketing have proven to be crucial battlefields on which companies companies need to engage in order to emerge. This issue of JCOM tries to shed some light on the communication and marketing practices used by private companies that sell direct-to-consumer genetic testing, from single genetic mutations to whole genome sequencing.

Volume 10 • Issue 03 • 2011

Sep 21, 2011 Commentary
Predictive or preposterous? The marketing of DTC genetic testing

by Timothy Caulfield

Direct-to-consumer (DTC) genetic testing has generated a great deal of social controversy. While the degree to which DTC testing actually causes harm remains uncertain, there is a consensus that the information provided by these companies should be accurate. Unfortunately, this is often not the case. Indeed, there are misrepresentations associated with all forms of testing, be it for superficial cosmetic services, athletic ability or disease predisposition. Countering this phenomenon will require a wide range of actions, including the use of formal regulatory mechanisms, the education of primary healthcare providers (in order to give them the tools necessary to advise patients and respond to questions) and more aggressive action by the genetic research community.

Volume 10 • Issue 03 • 2011

Sep 21, 2011 Commentary
From symptomatic to pre-symptomatic patient: the tide of personal genomics

by Marina Levina and Roswell Quinn

Personal Genomics Companies are an emerging form of biotechnology startup that bring rapidly advancing whole genome technologies to a variety of commercial venues. With a combination of direct-to-consumer marketing, social media, and Web 2.0 applications these companies seek to create novel uses, including entertainment, for what is described as predictive medicine – that is the use of genetic marketers to create health forecasts that would allow individual’s healthcare to be tailored to their individual genomic data. In this brief piece, the authors use a critical cultural approach to question how this combination of genomics research, marketing, and communications technologies may alter both patient experiences and research processes. In it we argue these companies radically expand the definition of a patient by claiming all consumers are simply pre-symptomatic patients. Moreover, by placing genomic data on both the marketplace and cyberspace, personal genomic companies seek to create new avenues of research that alter how we define (and access) research agendas and human subjects. Therefore, beyond commonly discussed issues of ethics and privacy rights, Personal Genomics has the potential to alter both healthcare priorities and distribution.

Volume 10 • Issue 03 • 2011

Sep 21, 2011 Book Review
A reference for science communication

by Marina Ramalho

The Encyclopedia of Science and Technology Communication has approximately 300 entries on science communication and is capable of meeting the needs of readers of differing profiles. The entries cover eighteen categories, including controversial science topics and tendencies of media coverage; panoramas of science communication in different regions or continents; legal and ethical aspects; important science players; history, philosophy and sociology of science; theories and research on science communication, and many other topics. By concentrating different information about a field of research and of practical multidisciplinary actions in only one source, the publication serves as a reference for beginners in the area as well as for those who are more experienced in the area. Although conceptualized to serve as quick introductions to the concepts and practices of science communication, the entries are contextualized and each item is explored from various angles in simple language.

Volume 10 • Issue 03 • 2011

Sep 15, 2011 Article
Public understanding of environment and bioenergy resources

by Gauhar Raza, P.V.S. Kumar and Surjit Singh

There exists a distinct disconnect between scientists’ perception of nature and people’s worldview. This ‘disconnect’ though has dialectical relationship with science communication processes which, causes impediments in the propagation of scientific ideas. Those ideas, which are placed at large cultural distance, do not easily become a part of cognitive structure of a common citizen or peoples thought complex. Low level of public understanding of bio-energy technologies is one such sphere of understanding. The present study is based on assumption that public debate on bio-energy is part of the larger human concern about climate change. In this paper we present meta-analyses from published literature and take a look at the surveys that have been carried out at national and international level. In the second section of the article we also present analysis of the survey study carried out in India and locate the shifts in public understanding of science.

Volume 10 • Issue 03 • 2011

Jul 25, 2011 Article
Media framing of stem cell research: a cross-national analysis of political representation of science between the UK and South Korea

by Leo Kim

This paper compares opinion-leading newspapers’ frames of stem cell research in the UK and South Korea from 2000 to 2008. The change of news frames, studied by semantic network analysis, in three critical periods (2000-2003/2004-2005/2006-2008) shows the media’s representative strategies in privileging news topics and public sentiments. Both political and national identity represented by each media outlet play a crucial role in framing scientific issues. A news frame that objectifies medical achievements and propagates a popular hope evolves as a common discourse in The Telegraph and The Guardian, with expanded issues that both incorporate and keep in check social concerns. South Korea’s Chosun Ilbo follows the frame of objectified science with a strong economic motivation, while Hankyoreh remains critical of the ‘Hwang scandal’ and tempers its scientific interest with broader political concerns.

Volume 10 • Issue 03 • 2011

Jul 11, 2011 Article
Print media reportage of agricultural biotechnology in the Philippines: a decade’s (2000-2009) analysis of news coverage and framing

by Mariechel J. Navarro, Jenny A. Panopio, Donna Bae Malayang and Noel Amano Jr.

This article presents key results of a ten-year study of media coverage of agricultural biotechnology in the Philippines, the only country in Asia to date to approve a biotech food/feed crop (Bt corn) for commercialization. The top three national English newspapers – Manila Bulletin, Philippine Daily Inquirer, and Philippine Star were analyzed to determine patterns of media attention measured by coverage peaks, tone, source of news, keywords, and media frames used. Biotechnology news was generally positive but not high in the media agenda. News coverage was marked by occasional peaks brought about by drama and controversial events which triggered attention but not long enough to sustain interest. The study provides a glimpse into the role of mass media in a developing country context. It shows how a complex and contentious topic is integrated into the mainstream of news reporting, and eventually evolves from an emotional discourse to one that allows informed decision making.

Volume 10 • Issue 03 • 2011

Jun 21, 2011 Commentary
Social Networks, a Populated Picture

by Fabio Fornasari

Man, by his very nature, puts things between himself and the environment, turning the latter into a place, a space. He arranges the environment around him on multiple levels, by projecting parts of himself and shaping the frontiers and the horizons that surround, define and represent him. This was learnt a long time ago, but a trace and a memory remain in the way man acts: when mapping reality (both physical reality and the reality explored through digital means), we observe it and find a way through it by adopting behaviours that have always been similar. What has changed in this mapping is the ability to recognise, especially the ability to interpret maps and creatively work them.

Volume 10 • Issue 02 • 2011

Jun 21, 2011 Commentary
Access to news on line: myths, risks and facts

by Lella Mazzoli

Although the debates on the Internet (sceptical, enthusiastic and finally more mature ones) in our country started in the mid 90s, it is only over the past few years that the Internet, especially thanks to social networks, has become a daily practice for millions of Italians. Television still is the main medium to spread information, but as it becomes increasingly cross-bred with the Internet (and other media too), the information-spreading process deeply changes. This creates, also in our country, the preconditions for the development of a web public (an active and connected one), founded on the new practices of multitasking and participatory information.

Volume 10 • Issue 02 • 2011

Jun 21, 2011 Commentary
Science and the Internet: be fruitful and multiply?

by Sveva Avveduto

What role and citizenship has the scientific thought on the web, or rather on the social side of the web? Does it benefit from the debate between peers and with the general public, or else does it only risk to become a monologue? How to deal with the number of instruments the Internet is able to provide in making, discussing and disseminating research? These are some of the questions tackled by the reflections from scholars and experts which were the basis for our debate.

Volume 10 • Issue 02 • 2011

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