Organising collaboration for strategic science communication in research projects
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Volume 25 • Issue 5 • 2026 • Transitions in Science Communication: Continuity and Change (PCST 2025)
Rapid and significant developments in the science of Autism Spectrum Disorders (ASDs) have provoked serious social and ethical concerns as well as positive influences worldwide. This study created a social agenda containing 21 important issues regarding the relationship between ASDs and society and the development of the science of ASDs. The agenda was constructed with the input of a variety of Japanese people who were provided with scientific ASD information and engaged in discussions regarding ASDs. First, opinions were sought via a questionnaire from the attendees of six science café sessions. Then, additional important issues were put forward by attendees of a larger dialogue session regarding the relationship between ASDs and society, again via a questionnaire. The agenda covered a wide range of issues, including information regarding ASDs, people’s understanding of ASDs, social support, education, the difference between ASD characteristics and individuality, ASD research, diagnosis, and social attitudes.
This introduction presents the essays belonging to the JCOM special issue on User-led and peer-to-peer science. It also draws a first map of the main problems we need to investigate when we face this new and emerging phenomenon. Web tools are enacting and facilitating new ways for lay people to interact with scientists or to cooperate with each other, but cultural and political changes are also at play. What happens to expertise, knowledge production and relations between scientific institutions and society when lay people or non-scientists go online and engage in scientific activities? From science blogging and social networks to garage biology and open tools for user-led research, P2P science challenges many assumptions about public participation in scientific knowledge production. And it calls for a radical and perhaps new kind of openness of scientific practices towards society.