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Oct 11, 2021 Article
Investigating the process of ethical approval in citizen science research: the case of Public Health

by Antonella Ficorilli, Giovanni Maccani, Mara Balestrini, Annibale Biggeri, Bruna De Marchi, Frederique E. M. Froeling, Florence Gignac, Regina Grazuleviciene, Gerard Hoek, Tjaša Kanduč, David Kocman, Valeria Righi and Xavier Basagana

Undertaking citizen science research in Public Health involving human subjects poses significant challenges concerning the traditional process of ethical approval. It requires an extension of the ethics of protection of research subjects in order to include the empowerment of citizens as citizen scientists. This paper investigates these challenges and illustrates the ethical framework and the strategies developed within the CitieS-Health project. It also proposes first recommendations generated from the experiences of five citizen science pilot studies in environmental epidemiology within this project.

Volume 20 • Issue 06 • 2021 • Special Issue: Third International ECSA Conference, Trieste 2020

Mar 21, 2013 Commentary
As requested: brief, frank, and informal

by Bruna De Marchi

Scientific journalism ought to pay attention not only to the “products” of science, but also to the ways in which it operates in any given historical and political   context. A critical analysis of the presently dominant rhetoric of innovation and unlimited growth is necessary to shed light on the relationship between science  and democracy. Equally profitable would be a thorough investigation of past and present controversies on the role of scientists in decision-making.

Volume 12 • Issue 01 • 2013